Tuesday, 28 July 2020 00:00

Become an EACH Star Maker and help provide ‘star’ nurses for vulnerable families

Written by  Michael Jarvis
Rate this item
(1 Vote)
Tina Howlett, Sarah Bayliss and Charlotte Pipe Tina Howlett, Sarah Bayliss and Charlotte Pipe

A Mundesley family have described how care from East Anglia’s Children’s Hospices (EACH) “feels like a big hug when you really need it most”, as the organisation launches a fundraising campaign to provide two ‘star’ nurses.

EACH is asking supporters to do 100 star jumps a day over five days and raise at least £50, as part of Star Makers. The charity hopes its campaign will raise £64,000 in total, enough to provide two of the nurses whose help is so greatly valued by families like the Palmers.

Ellie, six, lives with sister Eva, nine, mum Laura and her mum, Ellie’s grandmother, Heather. Laura is full-time carer to her girls, who are both home-educated, and Heather helps with care, too.

Ellie has Down’s syndrome, Ollier’s disease (a very rare bone disease that occurs in one in every 100,000 people), autism and complex lung and airway issues. She is dependent on a non-invasive ventilator to help her breathing.

All that means she requires 24/7 supervision and one of Laura or Heather even sleep in her room each night to ensure her safety. The tireless monitoring makes the support of EACH massively important.

Laura said: “EACH is the club you never want to qualify for, but now we are we’re so hugely grateful for the support and what that means to us as a family.

“We’ve accessed different support from EACH, including from the Clinical Nurse Specialists of the Long Term Ventilation (LTV) team. This has been invaluable, attending hospital appointments, helping chase any issues that need resolving and understanding any concerns I have about Ellie. It’s really reassuring having that support, especially from a team that do all they can to get to know both Ellie and our family. It’s a truly holistic approach that can most definitely be lacking at times when you have a child with complex needs and lots of different professionals involved.

“Having the support network we have from EACH has really helped us as a family and improved our quality of life. The care from EACH feels like a big hug when you really need it most.

1_1.jpg

Money raised during the Star Makers campaign will help ensure EACH can continue providing this level of support for hundreds of families right across the region. The charity, like others, has taken a considerable funding hit as a result of the COVID-19 pandemic.

Thanks to the efforts of supporters, government funding and taking full advantage of schemes available to it, EACH was able to survive an initial devastating drop in income and help support families at home by phone and online, having rapidly developed its knowledge and expertise in delivering services using virtual technology.

Laura and family have found lockdown and having to self-isolate a real challenge, like many families supported by EACH.

Laura said: “COVID has obviously impacted upon our ability to access services. We’re unable to attend The Nook for care days. We’ve been shielding since March and it’s certainly made life more difficult than usual. It’s felt like we’ve been forgotten about by many elements of our usual life, but not by EACH. We’ve had phone calls and emails checking in to see how we are, support from Charlotte the LTV nurse when I was concerned about Ellie and ongoing support from Michelle the counsellor, all of which have been greatly appreciated.”

While EACH is offering most of its services using virtual technology at the moment, it will need to get back to providing its full range of services as soon as possible. Its loss of income is going to continue for some time, including a period of recovery over the coming months and years that carries huge uncertainty, making Star Makers all the more important.

Tim Jenkins, EACH Norfolk Community Fundraiser, said: “This is a fun campaign to get involved with over the summer holidays. We’d love to see families and friends taking part together, maybe in relays, fancy dress or by dancing. Those that can’t jump can still make stars with their hands or arms. In addition, we have colour-in stars for windows and dot-to-dot activities, or star-to-star in this case. You can track your progress on our special charts and download a well-deserved certificate at the end. Don’t forget to share your star-making on social media and use the hashtag #EACHStarMakers. We’d also like to say a big thank you to Creative Sponge for supporting us in bringing this campaign together.”

For more information about the campaign and how to get involved visit www.each.org.uk/starmakers.

Last modified on Monday, 03 August 2020 21:24

Visit the following businesses

cache/resized/66123e44fd39ec27f0ac1c6eaa8c06b7.jpg
Lantern Financial Planning
Based in Norwich, Lantern Financial Planning offers a full financial planning service to both individuals and corporate clients to enable you to feel confident about your future. Our aim is simple:- To provide our clients with the highest quality ...
Explore
cache/resized/b956c51c189f0a1195ed211570bfc205.jpg
Clean Tech Carpet & Oven Cleaning
Professional cleaning of carpets, ovens, 3 piece suites, chairs, curtains as they hang in the window, stone, tile and wooden floors, windows, wheelie bins, conservatories. 
Explore
cache/resized/2e6db33d5cbfadd700626018e3b64528.jpg
Broadland Aerials Ltd
Broadland Aerials have been serving Norwich and the surrounding area for almost 20 years. We have built up a great reputation for value and excellent customer service. We are proud to be long standing members of Norfolk Trusted Trader. This is an ...
Explore
cache/resized/4b7de08c3a5e9de8a3e8b7df107121e2.jpg
Driftwood Gallery
Driftwood Gallery is the home of Paul Thetford Photography. At Driftwood Gallery we offer for sale fine art prints of Norfolk and beyond, Prints are available in a wide range of solid wood frames. We are now offering a full framing service for art ...
Explore
cache/resized/268bbdc8dd6d0eb6f9f17e02eef40a47.jpg
The Red Lion Hotel
The Red Lion Hotel is situated on the beautiful North Norfolk Coast overlooking the award winning Cromer Pier and award winning beach. At over 200 years old you'll discover many of its original features, including wood panelling, open log fires and ...
Explore
cache/resized/8c633440053520b35121955e716f75e9.jpg
Perfect Pamper
Perfect Pamper is a one-stop-shop for your party requirements.  We cover the counties of Essex, Norfolk and Suffolk providing you with mobile services delivered directly to your door.  We offer a spa-by-car service with a pop-up salon for ...
Explore
benefits banner

Related items

  • Shop staff and volunteers ‘time warp’ back to the 1940s

    East Anglia’s Children’s Hospices staff and volunteers stepped back in time to celebrate a 1940s-themed weekend in Sheringham.

    The annual feast of nostalgia took place on 18th and 19th September and was run by North Norfolk Railway.

    Businesses in the town were encouraged to get involved and EACH staff and volunteers decorated the window of their shop in Station Road. They also rolled back the years by wearing outfits from the era.

    EACH Shop Manager Naomi Munro said: “It was a very memorable weekend. We decorated our window with flags and everyone got in the spirit by dressing up. Many of our customers also wore special outfits so it was great fun and created a very happy, positive environment. It really was like being in a time warp and going back to the 1940s.”

  • Marathon in memory of brave Benny

    This weekend (Sunday 8th August) will see Benny’s Poppyline Marathon run in memory of a brave little boy from East Runton in Norfolk who sadly lost his battle with cancer last year.

    Benny Pitcher was just six year-old when he passed away in July 2020 after a 15 month fight against brain cancer. This Sunday (8th August) Benny’s dad Kevin will be joined by 17 other marathon runners as he completes the challenge. The marathon will start at Sheringham Primary School at 9am and finish outside the Crown pub on Lifeboat Plain at around 3pm. Fireworks to celebrate Benny’s life will be set off over the sea at around 4.30pm.

    Additional runners will be joining the group for shorter distances to show their support taking on a half marathon, 10k, 5k and fun run – with around 30 people in total will be taking part. It is hoped that pupils from Sheringham Primary School, where Benny attended, will take part in the fun run.

    Kevin Pitcher, Benny’s father has organised the event: “We were originally going to run the Brighton Marathon for Benny, but it was cancelled because of Covid. This event is our way of celebrating Benny’s life and giving back to our local community and the charities who have shown us so much support and kindness at this horrible time.

    “We want as many people out on the route as we can – to show support and encourage our runners. Please be bright and colourful, wave flags and wear superhero outfits. Cheer us on in memory of Benny!”

  • Ride for Life across Norfolk, Suffolk and Cambridgeshire returns

    All the beauty of the East Anglian countryside awaits cyclists who sign up to ride three counties in three days as part of a returning charity challenge.

    Ride for Life, back from Friday 6th May to Sunday 8th May 2022, sees participants covering over 200 miles to raise thousands of pounds for East Anglia’s Children’s Hospices (EACH).

    The first day starts at Johnston Logistics UK, the event sponsor in Snetterton, heads to The Nook, EACH’s hospice just south of Norwich, then down to Ipswich. The second takes riders past The Treehouse, EACH’s hospice in Ipswich, and across to Cambridge. The final day passes EACH’s hospice in Milton, just north of Cambridge, before heading back to Snetterton.

    Ride for Life has been a flagship event for EACH since 1993, with Johnston Logistics UK sponsoring it since the inception. This year’s staging is in memory of Richard Johnston, the founder of Johnston Logistics UK who sadly died in December 2018.

  • Australian labradoodle helps hundreds of East Anglian families

    A four-year-old dog called Sydney has been walking through 12 inches of snow in New York, as part of an international group of fundraisers supporting East Anglia’s Children’s Hospices (EACH).

    In January EACH forecasted an operational deficit of £2 million over the next year owing to disruption caused by the pandemic and encouraged people to run, walk or cycle 100 miles during February, as part of its EACH Mile Counts fundraising campaign.

    Jane Rous Milligan, EACH Music Therapist, based at The Nook, the charity’s hospice in Norfolk, has just celebrated her 15th year of working at EACH and decided to take part.

    Asking for support from friends around the world to reach a £100 target, she got more than she bargained for as eight plus Sydney and two other pooches opted to join her in taking on the challenge.

    Those taking part from the UK were:

    • Jane’s stepdaughter, Amelia Rous Milligan, from Norwich, and her dog Bonnie
    • Sarah Clulow, from London
    • Tracey Turvey, from Newport Pagnell, and her dog Charlie
    • Lucy Gatward, from Bristol

     hose taking part from the United States were:

    • Wendy Farrington and her dog Sydney, from New York
    • Aundrea Reno, from California
  • Mother and son race near 1000 miles to raise thousands for children’s hospices

    Mother and son duo Kate, a teacher at Hopton CEVC Primary School, and Toby Jones, 21, an Exeter university student, completed the mammoth challenge of cycling and running to every town across Norfolk to raise over £1,500 for East Anglia’s Children’s Hospices (EACH).

    It was Toby who had the idea back in March when lockdown first hit the UK. Having returned home from university, he was studying online and had a part-time job, but still felt he wanted to take on an extra project.

    On his one day off a week he would cycle to three or four towns in a day and proud mum, Kate, decided to join him. The pair decided to make a contest of it and raise money for EACH at the same time. Toby cycled to all 30 towns in Norfolk, while Kate ran the same distance each week around their home village, the pair clocking up a total of 940 miles over two and a half months.