Tuesday, 16 April 2019 00:00

Latest updates from Tia's Treasures

Written by  Lisa Hutchinson
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Latest updates from Tia's Treasures

Nearly 8 years on and Tia is still working hard raising awareness and fundraising for Epilepsy along with her Mum, Dad and 5 Brothers Alex 15, Adam 10, Jamie 9, Tommy 3 and Toby 1.


Tia recently made and sold over 100 purple bracelets for Purple Day and held a raffle at her Academy, Ormiston Venture with some fantastic prizes from various local companies.

Over £200 was raised for Young Epilepsy.

We have just funded our 9th Seizure Alarm for an 8 year old boy called DeeJay with Epilepsy, sadly DeeJay's baby brother died when he went into Epileptic Status at just a few months old.

We unfortunately haven't been able to organise anything on a large scale to celebrate and fund raise for the Tia's Treasures 8th Birthday on 21st May due to Toby and his health resulting in appointments every month either for his Epilepsy, Allergies, Hearing or latest diagnosis Willis Ebkom Disease (also known as Restless Legs Syndrome) but we do plan to decorate and hide some Tia's Treasures 8th Birthday themed Norfolk Rocks as well as Random Acts of Kindness.

We now have 2 fundraising pages set up one where funds go straight to Young Epilepsy

https://www.justgiving.com/tiastreasures

and one which is to fund Seizure Alarms for those in need

https://www.justgiving.com/crowdfunding/tiastreasures

Tia would love to fund another Seizure Alarm to someone in need by Tia's Treasures 8th Birthday.
Recently PulseGuard which is a Family run company based in Kent heard about Tia's Treasures and kindly gifted Toby a new alarm as his previous mattress alarm is only for Tonic Clonic Seizures and Toby has begun to have other types especially at night, the new alarm is very reliable and reassuring and allows us to download data and we are very grateful for the generosity.

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Last modified on Tuesday, 16 April 2019 22:08

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    Since 2018 when Toby the youngest member of the Team was diagnosed with Epilepsy after 5 Tonic Clonic Seizures resulting in 999 calls and trips to hospital we have focused on raising awareness for Epilepsy as well as raising funds for Young Epilepsy and Seizure Alarms, we funded Seizure Alarm number 13 in July and would love to fund Seizure Alarm number 14 by the end of November as November is Epilepsy Awareness month.

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