Friday, 14 December 2018 00:00

Christmas Update from Tia's Treasures

Written by  Lisa Hutchinson
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Christmas Update from Tia's Treasures

So far Tia has raised nearly £500 for Young Epilepsy as well as over £200 for The East of England Ambulance Service via the justgiving page and funded 3 Brio Wrist Alarms, 1 Alert It companion Mattress Alarm and 2 SATs Alarms, not just for Toby but for others battling with Epilepsy.

Toby's original diagnosis back in May was Focal Seizures and Focal Motor Seizures which generalise into Tonic Clonics, since then he has been on daily medication but still has various types of seizures, Myclonus, treated for Asthma and now undergoing investigations for food allergies or intollerances but he remains a happy mischievous toddler.

As November was National Epilepsy Awareness Month Tia created a flyer with information regarding Epilepsy highlighting the seriousness of it and that there is no cure to be given out and displayed you may have spotted it in local shops.

Tia has also been decorating and hiding Epilepsy Awareness themed Norfolk Rocks as well as Shells which she has used to raise awareness for SUDEP (Sudden Unexplained Death in Epilepsy) naming them Shells for SUDEP, her brothers have also helped to get involved with the decorating and hiding even Tommy (2) and Toby (1).

On 13th November Random Acts of Kindness were hidden and given out for World Kindness Day not only to raise awareness of Epilepsy but in memory of their Great Grandad Donald Brown who passed away in February this year, as 13th November would have been his 95th Birthday


Since Tia's Help Tia To Help Toby Appeal now known as Help Tia To Help Others we have managed to fund:

3 Brio Wrist Alarms
1 Alert It Companion Mattress Alarm
2 SATs Alarms

Tia made it her mission to fund one last alarm before Christmas and today we managed it, pretty good going considering we only started after Toby's Epilepsy Diagnosis earlier this year.

We will be continuing our fundraising for Seizure Alarms as well as fundraising for Young Epilepsy in 2019 and would like to thank everyone for their continuous support.

For more information please see www.TiasTreasures.net

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Last modified on Sunday, 13 January 2019 15:39

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