Sunday, 26 August 2018 00:00

Help Tia to help Toby

Written by  Lisa Hutchinson
Rate this item
(1 Vote)
Help Tia to help Toby

The youngest member of the Tia's Treasures Team Toby had his first Tonic Clonic Seizure in March and has since had over 30, 5 of which required a 999 call, after various tests Toby was diagnosed with Epilepsy in May, he has Focal Seizures which then generalise into Tonic Clonics, Focal Motor Seizures, Absences and just recently Drop Seizures.

Tia took it upon herself to set up a Justgiving Crowdfunding page called Help Tia To Help Toby, Tia raised over £1000 so she was able to achieve her goal of purchasing Toby a Seizure Alarm, she then managed to fund another 3 alarms and she has no plans in stopping there, she has now set up a new appeal called Help Tia To Help Others and plans on fundraising for as many Seizure Alarms as she can, these are life saving and life changing.

https://www.justgiving.com/crowdfunding/helptiatohelpothers

As well as this Tia is still working hard fundraising for Young Epilepsy with Tia's Treasures, I'm currently in the process of applying to be the Young Epilepsy Norfolk Fundraising Group Co Ordinator.

40092813_328891034515756_6605244532529299456_n.jpg

Read 879 times Last modified on Wednesday, 02 January 2019 18:31

Visit the following businesses

cache/resized/f1cc26fba2368d08fa5f6c0c1ab012c2.jpg
Westacre Theatre
What is Westacre?  What happens at Westacre and when?  Where is Westacre?  Well, a warm welcome awaits you at Westacre Theatre which has been offering inspiring, inclusive and creative excellence in the heart of West Norfolk for over ...
Explore
cache/resized/2795ffd277c93789c78890bc4512e87e.jpg
Stuart House Hotel
We are a small family run hotel situated in its own grounds and just a short walk from the centre of the historical town and port of Kings Lynn. The original house dates back to Victorian times when it was the private residence of a prominent King's ...
Explore
cache/resized/cd569e5f656622ba8805cbe0ee3081f6.jpg
College Farm
College Farm is a medieval house situated in the village of Thompson three miles from the market town of Watton.  It was built by Katharine's ancestors in 1349 as a College of Priests to serve St Martin's Church and the villagers of ...
Explore
cache/resized/ed105d2f84be2494675f9d71cae563e0.jpg
The Song Factory Ltd
All the songs on this Norfolk Heroes CD were composed by Bob Wright who has lived in Cromer most of his life. Most of the songs are true stories of people and places around Norfolk and give a good account of life in Norfolk past and present. Since ...
Explore
cache/resized/b956c51c189f0a1195ed211570bfc205.jpg
Clean Tech Carpet & Oven Cleaning
Professional cleaning of carpets, ovens, 3 piece suites, chairs, curtains as they hang in the window, stone, tile and wooden floors, windows, wheelie bins, conservatories. 
Explore
cache/resized/d023ef704f48e9bdb66b9dd141645a89.jpg
Gasway
We install, service & repair gas appliances, boilers and central heating systems for homeowners, landlords, businesses & Social Housing throughout East Anglia.
Explore
benefits banner

Related items

  • EAAA listed as 7th in the top 100 not-for-profit companies in the UK to work for

    East Anglian Air Ambulance (EAAA) listed as 7th in the top 100 not-for-profit companies in the UK to work for, as part of the Sunday Times’ Best Companies To Work For listing. They also went from receiving a one star to a three star rating in the year’s listing – which means they have received ‘extraordinary levels of engagement’ from their staff.

    The placing and rating of companies is based solely on staff survey feedback results, and as such is down to employee satisfaction within each organisation.

    EAAA is a helicopter emergency medical service provider covering East Anglia, with offices in Norwich, Ipswich, Cambridge, Melbourn and Peterborough. They provide a 365-day-a-year life-saving service, taking an expert crew consisting of a doctor, a critical care paramedic and two pilots directly to patients who have suffered life-threatening or life-changing accidents or medical emergencies. The clinical crew are supported by charity staff, consisting of a number of teams including; fundraising, operations, communications, HR and executive teams.

  • East Anglian Air Ambulance launch campaign to become a 24/7 service

    East Anglian Air Ambulance (EAAA) has launched an ambitious plan to become a 24/7 helicopter emergency medical service (HEMS) provider by 2020. The charity currently operates 365-days-a-year but not 24-hours-a-day, meaning that if an incident happened between midnight and 07:00 there is currently no HEMS provision in the region. The charity is aiming to cover this gap and become a full 24/7 HEMS service by 2020. To do that they need to raise an additional £1 million a year to fund the operation.

    The type of incidents the charity attend – serious road traffic collisions, cardiac arrests, traumatic injuries and other medical emergencies - do not stop when their crew go offline. While a 24/7 service seemed to make sense, the charity needed to be sure, so have been gathering evidence to prove it. They worked with the East of England Ambulance Service Trust (EEAST), who task them, to review incidents over the course of a year where critical care was required but unavailable. They also assessed the need first-hand by trialling an overnight service via rapid response vehicle (RRV) four days a week from the Norwich base. The results of this work confirmed a significant region-wide need for overnight critical care, particularly in rural Norfolk. In the first twelve months of the overnight trial they attended 220 missions, but they say that with the helicopter they could do so much more.

  • Christmas Update from Tia's Treasures

    So far Tia has raised nearly £500 for Young Epilepsy as well as over £200 for The East of England Ambulance Service via the justgiving page and funded 3 Brio Wrist Alarms, 1 Alert It companion Mattress Alarm and 2 SATs Alarms, not just for Toby but for others battling with Epilepsy.

    Toby's original diagnosis back in May was Focal Seizures and Focal Motor Seizures which generalise into Tonic Clonics, since then he has been on daily medication but still has various types of seizures, Myclonus, treated for Asthma and now undergoing investigations for food allergies or intollerances but he remains a happy mischievous toddler.

    As November was National Epilepsy Awareness Month Tia created a flyer with information regarding Epilepsy highlighting the seriousness of it and that there is no cure to be given out and displayed you may have spotted it in local shops.

    Tia has also been decorating and hiding Epilepsy Awareness themed Norfolk Rocks as well as Shells which she has used to raise awareness for SUDEP (Sudden Unexplained Death in Epilepsy) naming them Shells for SUDEP, her brothers have also helped to get involved with the decorating and hiding even Tommy (2) and Toby (1).

  • Ride for Life raises over £30,000 for EACH

    Over £30,000 has been raised for East Anglia’s Children’s Hospices (EACH) by 26 intrepid cyclists who rode 200-plus miles across the region.

    EACH’s Ride for Life started last Friday (20 July) and finished on Sunday at the home of headline sponsor Johnston Logistics UK, in Snetterton. There were overnight stops in between at Premier Inn Ipswich North and Premier Inn Cambridge A14 J32. The route through the East Anglian countryside also saw riders visit EACH’s three hospices - The Treehouse in Ipswich, Milton just north of Cambridge and Quidenham in the Norfolk countryside.

    The main peloton was joined by seven other cyclists, doing individual legs of ride, over the course of the three days.

  • Wymondham fitness club keeps wheels moving for charity

    New Revolution (NR) Health & Fitness Club raised £1,650 for East Anglia’s Children’s Hospices (EACH) at its second annual eight-hour ‘spinathon’.

    Eight members took part in the event, that sees people riding a stationary bike, also enjoying a barbecue, bar, raffle and live music.

    Nathan Gostling, NR Director, said: “I’d like to thank all the fantastic members who took part in this eight-hour challenge and everyone who turned up to cheer them on past the finish line. At NR Health & Fitness Club in Wymondham we love supporting EACH in their fundraising and over two years we have raised more than £2,000. We’re looking forward to the next charity boxing event we have planned, when again we hope to raise money for EACH.”